I had too many blogs going on so I am downsizing to one blog. Please come over to the new blog for all updates.
http://penelopemariesmith.blogspot.com
This will be me updates and MS updates.
Thanks
Penelope
To put a long story short, I had to have some lady surgery which thrust me into a terrible relapse which just keeps getting worse. I had to withdraw from the study for some real treatment. I havent seen my MRIs in a year and a half and have no idea where Im at except I know my symptoms are worse. I have an appointment tomorrow with a Neuro about an hour out of town. The VA is now picking up the bill because they have rated my condition service connected. I am only getting 30% but the woman with Disabled Veterans is helping me with the paperwork to get 100%. I currently cant feel most of my body and have not left my room for 2 weeks because im doing good to get to the bathroom and back. My husband moved our mini fridge into our room so I have easy access to drinks and food which i usually pick up on my way to and from the potty.
I am worried that I am in Progressive MS. Hopefully they will request an MRI so they can see if my lessions are getting worse. I have learned that I need to start being more honest about my condition. I try to pretend as if everything is ok, but in honest it isnt and to get the treatment I need I need to lay it out as it is. I have been trying to protect my family and I guess my own sanity from worry but it has gotten to a point where that is just not possible anymore.
I plan to ask the neuro for a recommendation to the VA for a wheelchair. I bought a cane at walmart to help me get to the doctor but a chair would be so much nicer and faster. I also hope to get him to sign off on a handicap pass for my car. My mother was here for a month helping me and she has one and boy was it convient and helpful.
I will try to keep up with what is going on and maybe give some back info.
Penelope
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